RSD - Nothing Left To Chance

Whether you call it Reflex Sympathetic Dystrophy Syndrome or Chronic Regional Pain Syndrome - it's still a hideous soul-sucking disease.

19.11.05

HELP GET RSD ON THE MONTEL WILLIAMS SHOW!

CREATING AWARENESS, MONTEL WILLIAMS SHOW

How can YOU create Awareness of RSDS?

In the past ten years, many newspaper stories have been written in papers all across America.

Television Shows have had pieces on RSDS, both local and National.

Radio spots on RSD Awareness have been run.

Many individuals have gone to Washington, DC to talk to Congressional Representatives and Senators about raising Awareness and funding for RSDS.

Has legislation been passed in State Governments to help further the education and funding for RSD? Yes. Has much funding actually occurred? No. Not yet.

Has it been enough? Has everyone heard of these efforts? No. Absolutely not.

So what can YOU do to help raise awareness?

UPDATE - NOVEMBER 2005

WE CURRENTLY HAVE ONE OF THE PRODUCERS OF THE MONTEL WILLIAMS SHOW INTERESTED IN DOING A SHOW FEATURING RSD AND FOCUSING ON THE FUNDRAISING EFFORTS OF LYNN MARKLEY AS NOTED IN THE ARTICLE ELSEWHERE IN THIS SECTION. SHE IS THE REMARKABLE YOUNG LADY WHO RAISED OVER $10,000 FOR AMERICAN RSDHOPE'S RESEARCH FUND, IN HONOR OF HER AUNT LORI RUDELITCH.

What we need to do now is fuel that interest by sending to the Montel show as many emails and/or postal letters as we can detailing why it is so important and vital that he tell our story. Now, in order to be consistent and to make our voices stand out as one we need to do the following;
In the Subject Line or First Line of your email or Letter, mention American RSDHope and the importantance of raising Research Dollars. Our Research Fund is called "HOPE FOR TOMORROW".
In your email/letter talk bout how our organization and especially the internet has impacted you in your struggle to understand this disease.

We have all heard before how so many shows don't want to hear the horror stories and that they want to hear positive stories. Let's give them what they want. Yes, we have all been negatively impacted by this disease in a severe way; physically and financially. So have millions of victims of a hundred other diseases. We have to share with Montel and his Producers what sets us apart from the rest, what makes us special!

I think what makes our community special is the way we have taken the impact of what is ranked as the most painful Chronic Pain Disease that exists today and gathered together on the internet in groups large and small and supported each other. We have started Support groups to comfort one another, websites to share information as soon as it comes out, National Organizations to hold Conferences and produce Videos and Support Research. We have done all of this and where a decade ago there was practically nothing, today a supportive community thrives!

THIS is our story, this is the positive story we need to share with Montel and the country and with all of the millions of other patients out there who have yet to hear about us, many of whom have yet to be diagnosed and who still live in fear and confusion wondering if they are losing their mind ...if it really IS all in their head...if they really are exaggerating their pain.

PLEASE SHARE OUR WEBSITE WITH THEM SO THEY CAN GET MORE INFORMATION!

AMERICAN RSDHOPE WEBSITE

Write to Montel by going to THE MONTEL SHOW and leave your story on the website and/or send it in via postal mail. Send it in once a week for amonth if needed. Share the site with your family and friends, fellow patients, etc. SPREAD THE WORD! LET'S HAVE OUR VOICES HEARD!

If you need an RSD Informational video to run on your local cable access channel, go to our Awareness Products section. We have many 30 minute videos that were done exclusively for this purpose and have been used for this purpose.

These are wonderful videos that can be shared with not only the tv station but also your local group, Chruch Groups, Civic Groups, and more; to explain all about RSD - who it affects, what it is, etc. as well as an RSD & the Family presentation.

KEEP WRITING AND PASS THE WORD!

Thank You! RSDHope

0 Comments:

Post a Comment

<< Home