RSD - Nothing Left To Chance

Whether you call it Reflex Sympathetic Dystrophy Syndrome or Chronic Regional Pain Syndrome - it's still a hideous soul-sucking disease.

25.7.05

RSD Radio Interview!

DO YOUR LOVED ONES STILL NOT UNDERSTAND WHAT RSD IS ALL ABOUT?

http://www.rsdhope.org/Showpage.asp?PAGE_ID=1&PGCT_ID=3136

This is an opportunity to have your friends and family learn about your disease and only take a few moments out of their day from where ever they are, no traveling required!

They can just tune their computers to the website listed below and listen in to the interview on RSD/CRPS!

http://www.healthylife.net/

and then click on ARCHIVES, AND THEN ON DANA TAYLOR "DEFINITELY DANA."

You will see our show listed under the July 20th. Keith & Lynne Orsini - RSD Awareness

The basics;

WHO, WHAT, WHERE, AND WHY?

WHO WILL BE INTERVIEWED?

Keith Orsini and Lynne Orsini - Founders of American RSD Hope, based in Maine and founded ten years ago this past April, and Petra Kirchmaier, significant other of Keith Orsini.


WHAT IS THE INTERVIEW ABOUT?

RSD, also known as Reflex Sympathetic Dystrophy, the most painful form of Chronic Pain that exists today, as well as how the organization came to be, what the disease is all about, how it affects parents and loved ones, and one of RSDHope's current projects, the "FACES OF RSD," National Quilt Project.

WHY IS IT IMPORTANT TO SHARE THIS INFORMATION?

RSD is a disease that affects between 1.5 and 5 million Americans between the ages of 1 and 101. It knows no boundaries and the pain is nearly unbearable, yet very little is known about it. American RSDHope is one of the largest organizations in the world dedicated to helping patient's and their loved ones cope with this disease as well as raise funds for Research into finding a cure for this orphan disease, and is but ONE of MANY such organizations worldwide! We need the public's help in spreading the word.

It is a good way to share the basics of RSD with friends and family who may not believe what you yourself tell them but when they hear it from an outside source, especially on television or the radio, it seems to have a bigger impact.

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