Social Security Disability Benefits

Applying for Social Security Disability Benefits

Ms. Debra Sjolseth has written a wonderfully detailed first-person account of her preparations to secure social security disability benefits.

Cut and paste the URL below into your browser. It's a must-read if you intend to apply for SSDI.

http://rsds.org/pdf/SGN9_v02.pdf

Pain Tamers: Living with Chronic Pain

Dr. John Stamatos, is one of the country’s foremost pain-management specialists.

A Breakthrough 4-Step Plan for Ending Pain

This book which combines treatments to achieve relief outlines a unique plan for using medications to alleviate pain, demonstrated retraining your body to pain-free motion and partnering with your doctor for maximum results. Painbuster was reviewed by the Arizona Daily Star who wrote “[A] beacon of hope for sufferers…a well-written, user-friendly and informative book.”

A Way To Help!

A Way to Help
September 10, 2005,
7:45 am,
Amanda's Walk,
Euclid High School, Euclid, Ohio.

This first annual walk-a-thon will raise awareness of RSD/CRPS and raise funds for research. The walk, sponsored by the Euclid High School NJROTC, honors Amanda Dostals, a high school student with RSD. Two different routes, one 3 miles and the other 8 miles, will be available.

For more information, call Kevin Cope, 216.952.6449 or Kayla Wheeler, 216. 255.1520 or send her an email at divalish15@aol.com

To register for the walk online, cut & paste this URL, http://www.idealist.com (click on organizations and type in Euclid NJROTC).

Info - Prescription Assistance Program!

PARTNERSHIP FOR PRESCRIPTION ASSISTANCE

Email Update - Friday June 17, 2005 3:30 pm EST

American RSDHope
For Distribution Everywhere
Program Unveiled on Montel Williams Show

The Partnership for Prescription Assistance brings together Americas pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that's right for them. Many will get them free or nearly free.

Its mission is to increase awareness of patient assistance programs and boost enrollment of those who are eligible. Through this site, the Partnership for Prescription Assistance offers a single point of access to more than 275 public and private patient assistance programs, including more than 150 programs offered by pharmaceutical companies. To access the Partnership for Prescription Assistance by phone, you can call toll-free, 1-888-4PPA-NOW (1-888-477-2669).
https://www.pparx.org/Intro.php
In order to find out what patient assistance programs you may qualify for, all you have to do is answer a few short eligibility questions. This site will help supply you with the information you need to get involved in a program and even allow you to download applications online. You can then follow the instructions on the application to apply.

Who We Are
The Partnership for Prescription Assistance brings together America's pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that's right for them. Many will get them free or nearly free. Among the organizations collaborating on this program are the American Academy of Family Physicians, the American Autoimmune Related Diseases Association, the Lupus Foundation of America, the NAACP, the National Alliance for Hispanic Health and the National Medical Association. To access the Partnership for Prescription Assistance by phone, you can call toll-free, 1-888-4PPA-NOW (1-888-477-2669).

Our Mission
Our mission is to increase awareness of patient assistance programs and boost enrollment of those who are eligible. The Partnership for Prescription Assistance offers a single point of access to more than 275 public and private patient assistance programs, including more than 150 programs offered by pharmaceutical companies.

Please, if you need help with your medications because of financial reasons, try this program. They expect over 70% of those who apply are getting approved. This was introduced on the Montel Williams Show for the first time anywhere. Get on there and get your application!!!Feel free to spread this email among your groups and Bulletin Boards and get the word out. The Director from PHarma also talked about how PHarma also is developing a program to work more closely with orphan diseases and Pharmaceutical Companies, to try and bridge the gap between the two. It was an amazing show if you didn't see it, try to catch a re-run or go to Montel's website and catch the transcript.
Peace, and freedom from Pain,
American RSDHope

www.RSDHope.org

For parents of children with CRPS

FYI for parents of children with CRPS

IDEA PUBLIC MEETINGS

John H. Hager, assistant secretary of the Office of Special Education and Rehabilitative Services (OSERS), U.S. Department of Education, is pleased to share with you the schedule for a series of public meetings to be held following publication of the Notice of Proposed Rule Making (NPRM) to seek input on the proposed regulations to implement programs under the Individuals with Disabilities Education Improvement Act of 2004 (IDEA004). Please note that a Federal Register notice scheduled for publication in the next few days reflects a change in the date for one of the public meetings. The meeting in San Antonio, Texas, previously announced in the Federal Register to take place on Monday, June 6, 2005, is now rescheduled for Thursday, July 7, 2005.
A complete list of meetings, locations and times appears below.

Site / Location / Date

Nashville, TN
Joe and Faye Wyatt Center for Education
1930 South Drive
Peabody College
Vanderbilt University
Nashville, TN 37203
Friday, June 17, 2005
1:00-4:00 p.m., 5:00-7:00 p.m.

Sacramento, CA John F. Kennedy High School
6715 Gloria Drive
Sacramento, CA 95831
Wednesday, June 22, 2005
1:00-4:00 p.m., 5:00-7:00 p.m.

Las Vegas, NV Donald C. Moyer Student Union
University of Nevada, Las Vegas
4505 Maryland Pkwy.
Las Vegas, NV 89154
Friday, June 24, 2005
1:00-4:00 p.m., 5:00-7:00 p.m.

New York, NY W Hotel of New York
Forest 1 Room
Lexington Avenue
(Between 49th and 50th Street)
New York, NY 10022
Monday, June 27, 2005
1:00-4:00 p.m., 5:00-7:00 p.m.

Chicago, IL The Palmer House Hilton
Red Lacquer Room
17 E. Monroe Street
Chicago, IL 60603
Wednesday, June 29, 2005
1:00-4:00 p.m., 5:00-7:00 p.m.

San Antonio, TX Education Service Center, Region 20
1314 Hines Avenue
San Antonio, TX 78208
Thursday, July 7, 2005
1:00-4:00 p.m., 5:00-7:00 p.m.

Washington, DC
Gallaudet University
Kellogg Conference Center
800 Florida Ave, N.E.
Washington, DC 20002
Tuesday, July 12, 2005
1:00-4:00 p.m., 5:00-7:00 p.m.

Please watch the Federal Register for the draft regulations to implement programs under IDEA 2004, which will be published as an NPRM in the near future. Individuals can register to comment at the door, on a first-come first-served basis. Individuals can provide oral and written comments about the NPRM at the meetings; written comments that accompany oral remarks are optional.

Written comments or suggestions about the NPRM can also be submitted electronically to comments@ed.gov, or mailed to:
Office of Special Education and Rehabilitative Services
U.S. Department of Education, 400 Maryland Avenue, S.W.
Potomac Center Plaza, Room 5126
Washington, DC, 20202-2641

Questions can be directed to OSERS' main number, (202) 245-7468, or, if a telecommunications device for the deaf (TDD) is needed, individuals may call the Federal Information Relay Service (FIRS) at 1-800-877-8339.

For a copy of the law and other pertinent information, please visit the U.S. Department of Education's Individuals with Disabilities Education Improvement Act of 2004 Web page at:
www.ed.gov/policy/speced/guid/idea/idea2004.html